Update on Luke today 10/19/2010

Well today was very stressful, but before I give everyone an update, Regina, Luke and I would like to thank everyone for your prayers and concern and continue to ask for them.

OK, here goes.

We went to Emory today for our first visit there.  Meet his new doctor. (we all really like her).  Basically she took a detailed history, etc.... and made the determination for Luke to go on meds at least for about a yr, maybe a little longer.  She stopped short of really giving a diagnosis of Epilepsy this morning, but said he does meet the clinical definition.  She believe his seizures could be related to his premature birth, but she can't really say for sure. Too long to explain why here, but basically, there is belief on premature children that the brain is not fully developed and it tends to hard wire itself differently than if allowed to develop in the womb.  That is a self defense mechanisms built into the brain to help it grow in the event of an early birth.... Anyway, as he reaches adulthood, sometimes those connections may become disassociated, etc.... hence he has the seizures... when his brain has a chance to totally relax.  (Both of his seizures where during the first 15 or so minutes of a nap.)

So, we left Emory with an Rx for meds and an appointment next Monday for a 24 hr EEG.

We came home after eating some lunch near Emory.  Luke was going to head back to school, but take a short nap first.  He was on the sofa for about 15 mins, feel asleep and had another tonic-clonic (Grand-Mal) seizure.  This one was pretty bad.  Kinda in between his 1st one and the 2nd one.  We did the 911 thing.  The Neurologist wanted him to go to C'ville Medical to be checked out to be sure he was ok.  

She modified the meds she originally prescribed as the 1st Rx was going to take about 6 weeks to totally get in his system.  He will be taking 2 meds for 6 weeks.  The first one she prescribed and the second one also.  She is very concerned with him having another one, hence the addition of another med. that will act faster until the 1st one can get in his system.

We are at home and none the less, pretty stressed out but really trying hard to leave this to God to handle but still be the parent and caregiver.

He seems fine but his head is really hurting as he landed on his head as he feel off the sofa.   Everything checked out at the hospital so we are hoping for no concussion.

We will still be doing the 24 hr EEG next week.  All his labs and test appear perfectly normal, but the brain is still a very mysterious thing.  God created a marvelous thing with the brain and we really still don't know much about it.

We are totally trusting in the God, but to be perfectly honest, we are pretty stressed at this point.  Not complaining but just being real with you guys.

Please PRAY for Luke that his seizures will stop and the meds will work.  There are side effects to both meds.  We are hoping and praying the first meds chosen do the job with no side effects.

Thank you so much for your prayers.  We really do appreciate them and Luke does as well.

God Bless

Lee, Regina and Luke